So I’m really terrible at not posting for a long time, then posting everything at once.
Earlier this week, I finally got a letter regarding my application for the medical card. I got it! Once my Mesalamine is preauthorized, I will be able to get it at a very affordable price. I am so thankful that I now have an opportunity to have relief.
I’m currently on my way home from a family trip to see my brother in Florida. My mom is gluten free, so we went to the store and picked up some GF food to have at my brother’s house. I had some cheese last night, but was dairy free besides that.
I’ve been eating a lot of gluten and dairy again. I’m poor and it’s cheap. Buuuut I’ve also been really sick and nauseous, lots of restroom trips, fever, stomach pain, blah blah blah, for the past few weeks. Along with the medical card, I got a Link card for groceries. It’s sorta embarrassing, but it has saved me. Diet is so important to keep this disease in remission. You have to know your triggers and take them seriously. Take care of your body.
We ate at restaurants a few times during our trip. I honestly sorta dread going out to eat now, but it all turned out fine. I had rice, beans, and corn flour taquitos. Shrimp, rice, veggies, specific GF sauce. The ice cream shop had a dairy free option. I didn’t have to go out of my way to find food and I didn’t have to inconvenience anyone.
I did have to use the restroom quite a bit and I definitely has some “oh shit” moments. I’ve got about a 5 minute window once the sensation hits. At one restaurant, I swear to god it was only a 2 minute window. Single person restroom. Not occupied. I genuinely do not know what I would have done if it was occupied.
We went to the beach a couple times and I was afraid the restroom urge would hit me, but it didn’t. Again, not sure what I would’ve done but it worked out.
The main issues I had on this trip were unrelated to the Ulcerative Colitis. I got sunburned and the ocean took my only prescription glasses. Could’ve been worse.
I’m feeling a lot less bitter than I was, and I am hopeful that things will keep looking up. You need to work with what you have and do your best to remember the good stuff.
Thanks for reading.